I never knew much about epilepsy. My understanding of epilepsy was that if a person had epilepsy the person had seizures and seizures meant convulsions. That was the limit of my understanding about epilepsy until two years ago. Two years ago, my understanding of epilepsy changed dramatically. Two years ago, my then-17-year-old daughter had her first seizure and then another and then another. Epilepsy suddenly was a part of my world. It invaded out of the blue…with no warning, or at least none that we could understand…and it has stayed, bringing changes and dynamics that I simply didn’t know existed.
With Amy’s first seizure, there were convulsions and a rigid body and unconsciousness that lasted an eternal several minutes. In those minutes, the lives of our family changed forever.
I didn’t know that having a seizure meant that in our state ofAlabamayou couldn’t drive for 6 months.
I didn’t know that having two unprovoked seizures meant that you are officially diagnosed as having epilepsy.
I didn’t know that seizures can cause horrible headaches.
I didn’t know that a seizure can so affect a person’s brain that it takes weeks to months for a body to recover and regain its strength.
I didn’t know that seizures and anti-seizure medication can cause memory loss.
I didn’t know that there are so many anti-seizure medications.
I didn’t know that a person can still have a seizure while taking an anti-seizure medication.
I didn’t know that seizures can begin in many different parts of the brain and affect different nerve and muscle functions.
I didn’t know that having a seizure can be terrifying for the person having it.
I didn’t know that having a seizure can feel like free-falling.
I didn’t know that there are different types of seizures and not all seizures have convulsions with them.
I didn’t know that epilepsy can be so debilitating.
I didn’t know that people with epilepsy can have wonderful and fulfilling lives.
I didn’t know that having epilepsy would make my daughter all the more beautiful and heroic to me.